Planning the Evaluation of Patient Engagement in the PriCare Research Program

Authors

  • Alya Danish Université de Sherbrooke, Quebec
  • Marlène Karam Université de Sherbrooke, Quebec
  • Véronique Sabourin Université de Sherbrooke, Quebec
  • Catherine Hudon Université de Sherbrooke, Quebec
  • Judy Porter NS BRIC, Nova Scotia
  • Donna Rubenstein NS BRIC, Nova Scotia

DOI:

https://doi.org/10.3138/cjpe.70805

Keywords:

case management, patient engagement, PriCare, program logic, SPOR

Abstract

The involvement of patients, their families, or their representatives is becoming increasingly common in health-care research. However, theoretical justification of patient engagement (PE) and consistent guidance on how to include patients as key stakeholders on research teams are still lacking. This paper describes how the PriCare group integrates PE into its program’s governance structure and uses a program logic perspective to engage patients in the planning phases of a research study based on resources, processes, and relationships, guided by the SPOR-CIHR’s PE framework. The PriCare approach facilitates the evaluation and continuous improvement of PE.

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Published

2023-04-21

How to Cite

Danish, A., Karam, M., Sabourin, V., Hudon, C., Porter, J., & Rubenstein, D. (2023). Planning the Evaluation of Patient Engagement in the PriCare Research Program. Canadian Journal of Program Evaluation, 37(1), 104–116. https://doi.org/10.3138/cjpe.70805

Issue

Vol. 37 No. 1 (2022): Spring

Section

Research and Practice Notes

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Copyright (c) 2022 Alya Danish, Marlène Karam, Véronique Sabourin, Catherine Hudon, Judy Porter, Donna Rubenstein

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